By David Bryan, reposted from The Reluctant Internationalists Blog
Dora Vargha’s blog post on November 25th discussed the current financial difficulties faced by the Peto Institute in Budapest in the context of historical approaches to disability in Hungary. The Institute may be familiar to British readers who remember its rise to prominence in the late 1980s and its role in the debate around conductive education in the treatment of children with neurological disorders. The links between the UK and the Peto Institute provide a fascinating example of patient-led transnational history in Cold War Europe.
Princess Diana at the Peto Institute (1990)
The Institute first came to public attention following the broadcast of the BBC documentary Standing up for Joe in April 1986. The documentary followed the story of the Hadley family who had taken their severely disabled son to Budapest for treatment. The Institute pioneered the system of conductive education developed by its founder, Andras Peto, in the aftermath of the Second World War, which involved an intensive programme of physical and speech therapy under the supervision of “conductors” combined with very high expectations of the progress children could achieve.
The documentary, broadcast at prime time on BBC1 and watched by over five million people, caused a national stir. The BBC received 11,000 letters of enquiry, questions were asked in parliament, and a lobby group, the Foundation for Conductive Education, was set up to promote its use in the UK. The system was presented in the media as more holistic than the medicalised approach to treatment in the UK, and many parents were attracted by the positive expectations it had of potential progress against a perceived negativity and conservatism amongst UK medical staff. Over the following years UK families flocked to Budapest, often supported by national and local campaigns to raise funds for treatment. The Times estimated that over 600 UK children had visited the centre by 1990.
However, the treatment was not without controversy. Many within the British medical establishment felt that the claims for its success were overblown, and that the appearance of progress owed much to the fact that the Institute was selective in the cases it accepted. The Chartered Society of Physiotherapy published a report in 1988 questioning many of the Institute’s claims, whilst the Spastics Society, initially wary of the programme, was picketed by the Foundation for Conductive Education over claims that its own conductive education schemes weren’t the real thing.
One of the most interesting features of the coverage of the Institute is its presentation in the context of the Cold War. Andrew Sutton, the Director for the Foundation for Conductive Education, described it as a ‘Len Deighton Cold War story, coming from a street near you’, with the media frequently describing families moving “beyond the iron curtain”. It certainly represents one of the most widespread and high profile instances of UK residents experiencing life in the Eastern Bloc prior to the end of communism. The BBC’s follow-up documentary to Standing up for Joe broadcast in 1987, which tracked the story of the British families who had followed in the Hadley’s footsteps, was entitled To Hungary with Love.
The Peto Institute also played a role in Anglo-Hungarian relations during the transition to democracy. In December 1989 the UK government announced £5 million of funding for the Institute’s new international centre to guarantee places for British children and pay for training of a group of British conductors. This funding was discussed as part of a wider package of support when Hungarian Prime Minister Miklos Nemeth visited Margaret Thatcher on December 14th. In an article on the 6th January, The Times presented the funding as part of a range of government measures to form closer medical and scientific links with the Soviet Union and Eastern Bloc countries. Following the first free elections in March 1990, Princess Diana made a high profile visit to the Institute as part of a four-day tour of Hungary where she presented an honorary OBE to its director, Dr Maria Hari.
The controversy around conductive education has never entirely gone away. In 1993 the government-commissioned Birmingham Project indicated that it was no more effective than comparable UK treatments, a claim that continues to be challenged by its adherents, whilst in 2003 Peter Randall from Kent attempted to sell his kidney on ebay to fund conductive education for his daughter. Although conductive education is now more widely available in the UK, British children continue to visit to Peto Institute for treatment.